Complex Regional Pain Syndrome - New Zealand

DUE TO MY LIFE BEING BUSY AND MY HEART NO LONGER IN IT, THIS WEBSITE WILL BE CLOSED DOWN AT THE END OF NOVEMBER.

The Beginning to ........

Let's go back to June 2008, I had just completed my first 1/2 marathon a month before in May. I had just picked up my daughters friend, it was raining and I slipped on the bottom 3 steps, but me being tough goes yes I am fine, and heads home. The next morning could not walk on my left foot, thought oh know possibly a break as I had broken this leg 3 times before over the years, so headed to A&E and got it x-rayed and yip 1 break and 1 spiral fracture. In a cast for 6 weeks and thought that was the end of that. 

Well boy I could not have been more wrong, it never healed, went back and got it x-rayed again and again, as it was so swollen and painfull, but nothing showed on the x-ray. Figured it was something I would just have to live with which I did for a good 2 years. 

But just before May 2011, I was having to take 4 lots of nerofen just to get through a shift of work.... I knew something was wrong but had no idea what, whatever it was, I knew it was just getting worse. 

Anyway in May 2011, I decided biking was the way to go to get fit as walking was getting harder and harder.... That was until I did a head first over the handlebars and smashed my wrist..... Ended up at A&E and yip a broken wrist, after trying to manipulate it back in with no success, surgery was required where they placed a plate and pins in the distal radius. 

After the cast came off, I could not move the wrist and was in tears with pain, they referred me to a hand therapist and from there was referred to a pain specialist and on August 3rd 2011 was officially diagnosed with CRPS/RSD. From there we also discovered my ankle had been undiagnosed CRPS/RSD.

So here we are in November 2011 and I now have CRPS/RSD in my right ankle/leg and both wrists/arms. 

Well here we are in September 2012, and I am still on ACC and studying part time - luckily it does not seem to have spread to anymore of body. I am on many meds a day, to help with the pain, and of course that comes with many side effects (a catch 22 situation). I have a psychologist and hand therpaist I see regularly 

But the future is looking good for me, and while I am able to I plan to enjoy as much of it as I can, I have a wheelchair for longer distance walking, and we are planning a trip to the Gold Coast July 2013, so am trying to get as fit as I can for that, and that gives me something positive to focus on.   

2017 UPDATE:
Here we are in April 2017, the CRPS had taken over my life and I decided I needed to turn this around, so I did my training and am now am a professional nail tech, and have my own business, I have started back into a weight-loss journey. I am coming off all my meds and by mid 2017 I hope to be med free. So for now my main focus is building up the business and coming of the last of the meds as well as weight-loss and getting fitter.